Purple Canaries

Joyce Gould with Jill Gould

Day 5 National Porphyria Awareness Week

NPAW 2021 Day 5 PURPLE CANARY COMMENTARY: ACUTE PORPHRYIA INFORMATION: A COMBINATION OF ANECDOTE, MYTH AND TRUTH?

Information about the porphyrias has been traveling through medical circuits since its earliest presentation—from patients’ anecdotal reports to medical scientific interests to society at large as a blend of anecdote, myth and fact.  According to the Merriam-Webster dictionary, an anecdote is “an interesting biological incident”; a myth is “a popular belief or tradition that has […]