Purple Canaries

Joyce Gould with Jill Gould

Heme Deficiency in Acute Porphyrias

Day 7 NPAW 2021 PURPLE CANARY COMMENTARY: CAN PORPHYRIA EXPERTS’ INFORMATION REALLY BE RELIED ON?; WRAP-UP ON RARITY/PREVALENCE; HEME DEFICIENCY; DIAGNOSTICS

The earliest transcript of Alnylam’s givosiran (now Givlaari) Roundtables in the PC library is dated August, 21, 2014.(1) Dr. Karl Anderson, UTMB and chairman of APF’s scientific advisory board (SAB) was a participant of that session. I counted at least eleven times where Dr. Anderson provided ambiguous information during his presentation–an introduction to the disease […]