Purple Canaries

Joyce Gould with Jill Gould

NIH Porphyria Consortium

National Porphyria Awareness Week 2020 4/21

Continued… Why would intelligent, medically trained, oath-swearing physician-scientists (experts no less) allow such medical mockery to happen? One word—motive. And that’s what links APF et al and Hitler’s Big Lie Technique (BLT)—motive. On its face, “Make the lie big, make it simple, keep saying it and eventually they will believe it” was the launching point […]

NPAW – April 19, 2020

Continued from National Porphyria Awareness Week, April 18, 2020 How these rejected patients’ predicaments compare with the horrific enormity of Hitler’s era of lost souls and destroyed lives may not be readily fathomable but one must remember that individual relativity and contemporary times reign. These people’s lives have been medically, financially, emotionally and socially ruined […]


National Porphyria Awareness Week, April 18-15, 2018 While telling me that her acute porphyria diagnosis, granted in her country of origin had just been revoked and the beneficial treatments she’d received there refused by the APF-connected US porphyria expert she’d approached for help, a desperately ill patient blurted out, “what they are doing to us […]