Purple Canaries

Joyce Gould with Jill Gould

Porphyria Expert Ethics

BONUS 2021 NAPW COMMENTARY: ***IMPORTANT PURPLE CANARY ALERT***

TO PATIENTS WHO ARE DESPERATELY AWAITING AN ACUTE PORPHYRIA DIAGNOSIS but haven’t “met the metrics” that is, haven’t excreted “required” urinary porphyrins/precursors, please, for your own safety and sanity, DON’T divulge your doctor(s) name and/or location to ANYONE in this or any other FB forum. Unscrupulous people have been floating among these forums for years. […]