Purple Canaries

Joyce Gould with Jill Gould

Seeking Clarity Among Acute Porphyria Chaos

ACUTE PORPHYRIA (VP) PATIENT ODYSSEY 2/8/2021

PURPLE CANARY SEEKING CLARITY AMONG ACUTE PORPHYRIA CHAOS Presents AN ACUTE PORPHYRIA (VP) PATIENT ODYSSEY, February 8, 2021             A woman was biochemically diagnosed some years ago with Variegate Porphyria (VP); that diagnosis was subsequently DNA-confirmed. She appropriately received hematin therapy which proved to be effective. The treatment held up for a while, then the […]